Ask Leo Hanes All About Lung Cancer

Dec 01 -02

No comments

Dec 03 - Wednesday

Appoint with Dr Retera at 1500

Had bloodwork done = ckecks OK

Tumor is all clear, slight signs of pneumonits near the esophagus still

Investigating complaints re: tingling feet and hands plus fatigue led to himn doing an electrocardiogram as blood pressure and heart rate are way too high, and need to find cause

Another round of bloodwork scheduled plus an appointment with cardiologist, Dr Fingal, for Monday Dec 08

Dec 04

No comments

Dec 05 - Friday

Got bloodwork at hospital completed

Dec 06 -07

No comments

Dec 08 - Monday

Appointment with Dr Fingal…took medical history

Completed electrocardiogram, and then an echogram

All heart functions tested ok, no fluids around heart, tryliceride, and cholestral levels elevated slightly

He explained that heart rate is too high and often caused by some other factors

He prescribed another set of blood tests to check thyroid, plus a 24 hour heart monitor/ekg for Thursday pickup

Next appointment will be in the new year Jan 12

Dec 09

No comments

Dec 10 - Wednesday

A third night of my snoring, and wheezing sent Trees to spare room so she could sleep too

Afternoon nap time 1400-1530

Woke up to another coughing spell

Dec 11 - Thursday

1045-1130 get EKG monitor attached for a 24 period 

Dec 12 - Friday

Return to hospital to remove EKG monitor, and submit completed diary of my activities

Dec 13 - Saturday

Afternoon nap 1430 - 1600

Dec 14 - 17

No comments

Dec 18 - Thursday

Followup with Dr Lockefeer at 0820 …discussed the book and identified certain “life traps” to follow up on

Dec 19 - 23

No comments

Dec 24 - Wednesday

Christmas Eve dinner and gift exchange with Yvonne and Gretjan

Dec 25 - Thursday

Christmas breakfast and gift exchange with Trees…..

Trees is sick with a bad cold she had been fighting all week, cancelled our invitation to family dinner at Huub’s

Spoke to most of my family in Canada throughout the day, call from my son Chris on “boxing day”, our 2nd day of Christmas here in the Netherlands

Dec 26 - Friday

We enjoyed our turkey dinnner…not a tradition here in Holland

Dec 27 - 29

No comments

Dec 30 - Tuesday

Afternoon nap 1430 - 1715………YAWN!!

Dec 31 - Wednesday

GELUKKIG NIEUWJAAR!! Happy New Year!!
Oudejaarsavond ( Old Years Eve) - See How the Dutch Celebrate New Years Eve

Listening to the fireworks here at 1430…….

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Nov 01 - Saturday

Just a reminder note that the gout in my left big toe had flared up again yesterday, and I had taken 2 arthotec during the day

Today I was up at 0745…took 1 arthotec….gout pain subsided over the day

Nov 2 - 6

No comments other than I busied myself with my online business workings

Nov 07 - Friday

Followup appointment with Dr Lockefeer at 0900. I rode my bike, a short 10 minute ride to the hospital. She commented on how tired I looked at the beginning…..

Discussed how a life threatening situation often causes us to examine ourselves more closely and question our reactions, and what may cause them….

Nov 08 - Saturday

Once again a long afternoon sleep: 1330 - 1600

Nov 09 -10

No comments

Nov 11 - Tuesday

Manage a 30 minute walk along the canal, finish with a lot of tingling in legs and arms

Nov 12 - Wednesday

A mysterious bruise appears above my left eye, gone by the following day

Nov 13 - 17

No Comments

Nov 18 - Tuesday

Slept in until 1000  :))

Managed a 30 minute walk by the canal…. ended with tingling feet and hands

Nov 19 - Wednesday

Mangaed a 45 minute walk by the canal….again ends with the tingling feet and hands

Nov 20 - 25

No comments other than busy with online workings, and the first snowfall was Saturday Nov 22…a light covering, then Sunday snowed most of day ( 2-3 inches), mostly melting overnight

My brothers 57th birthday on Nov 25

Nov 26 - Wednesday

Followup appointment with Dr Lockefeer at 1015…discussed emotional triggers, expectations, anticipation and managing reactions…ordered recommended book from Amazon

Nov 27 - Thursday

No comments

Nov 28 - Friday

Last day of predisone meds - Off the steroids!!

Nov 29-30

No furthur comments

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Starting the month with no comments for Oct 01-05, other than we took a weekend getaway to Germany from Friday Oct 03- Sunday Oct 05…We very much enjoyed the “quiet time” at The Golden Tulip, Castrop-Rauxel

Oct 07 - Tuesday

Up at 0530 , notice coughing has increased since I reduced my meds to 5 mg predisone per day, starting last Friday….

Oct 08 - Wednesday

OOPS!! I realized I had been taking the wrong meds ( not predisone)  since Friday…so in fact I had came off the steroids cold turkey since last Friday……back on correct meds

Oct 10 - Friday

Awake at 0300 with coughing spell - foamy clear/white mucus has started to dominate the coughing

Awoke again at 0745

Appointment at  0900 with Dr Loeffer…a part of the cancer support groups offered by our hospital facility, originally appointed to assist Trees and myself with the emotions involved with the cancer and treatment, meanwhile another resource had came available for Trees, so I attended this by myself….identified “lots of losses” that need to be examined.

I found the communication to be very useful ….There were 2 additional followups scheduled for a later time

Oct 12 - Sunday

Awoke at 0115 ….yet another coughing spell

Awake at 0730, took a drive to the coastal village of Yezeke from 1200 - 1600, stopping at Gilze Hotel near home for coffee, and dessert

Again a ribcage pain begins - took 2 x500mg parasidimol….that helps

Oct 13 - Monday

Some lingering rib cage pain throughout the day, took 2 x 500mg parrisidomol at 1330

Slept 1530 - 1730

Oct 15 - Wednesday

Followup appointment with Dr Retera, my lung specialist, at 1630

Revealed that pneumonits is improving somewhat, the upper lung is clearing, but an area in the lower center near the esophagus is still lingering.

Next Step: continue with reduced meds 1 x 5mg for 3 weeks, then 1 x 2.5mg predisone for 3 weeks util next appointment Dec 03

Oct 16 - 31

No further comments

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Sept 26 - Friday

Enjoyed time with sister-in-law, Anne Marie Birthday in the evening

Took 2×500mg  parasidimol before bed at 2300

Sept 27 - Saturday

Awoke at 0630

Slept 1530-1615…took 1 x 500mg parasidimol

At 2130 took 2 x 500mg parasidimol…then bed again at 2230

Sept 28 - Sunday

Up at 0730, again slept 1400-1630

Took 1 x500mg parasidimol before bed at 2230

Sept 29 - Monday

No comments

Sept 30 - Tuesday

Taking notice that trips up and downstairs leaves me with shortness of breath, and heart racing…seems has been like this for a few weeks now

Again took 1 x 500mg parasidimol at bedtime 2230

It appears that the radiation pneumonitis is the dominant concern during this post radiation period

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Saturday Sept 20

My oldest daughter Tammy, in Toronto is celebrating her birthday today, also picks up Tracy and Tim from airport after a safe trip from Amsterdam….Happy Birthday!! We speak to them all by telephone early afternoon, evening here with the 6 hour time difference.

Hey it is almost October, the leaves are turning color, and falling quite quickly now ,,,,,,,,,its been some year here anyway

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So far this week has been uneventful, still suffer from some fatigue, and shortness of breath, especially if I over exert myselfSpoke with my son - Chris - His 39^th birthday today Sept 01, he lives in Kingston, Canada

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