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January 2009
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Post Radiation Period: Dec 01-31

31 Dec, 2008  No Comments

Dec 01 -02

No comments

Dec 03 - Wednesday

Appoint with Dr Retera at 1500

Had bloodwork done = ckecks OK

Tumor is all clear, slight signs of pneumonits near the esophagus still

Investigating complaints re: tingling feet and hands plus fatigue led to himn doing an electrocardiogram as blood pressure and heart rate are way too high, and need to find cause

Another round of bloodwork scheduled plus an appointment with cardiologist, Dr Fingal, for Monday Dec 08

Dec 04

No comments

Dec 05 - Friday

Got bloodwork at hospital completed

Dec 06 -07

No comments

Dec 08 - Monday

Appointment with Dr Fingal…took medical history

Completed electrocardiogram, and then an echogram

All heart functions tested ok, no fluids around heart, tryliceride, and cholestral levels elevated slightly

He explained that heart rate is too high and often caused by some other factors

He prescribed another set of blood tests to check thyroid, plus a 24 hour heart monitor/ekg for Thursday pickup

Next appointment will be in the new year Jan 12

Dec 09

No comments

Dec 10 - Wednesday

A third night of my snoring, and wheezing sent Trees to spare room so she could sleep too

Afternoon nap time 1400-1530

Woke up to another coughing spell

Dec 11 - Thursday

1045-1130 get EKG monitor attached for a 24 period 

Dec 12 - Friday

Return to hospital to remove EKG monitor, and submit completed diary of my activities

Dec 13 - Saturday

Afternoon nap 1430 - 1600

Dec 14 - 17

No comments

Dec 18 - Thursday

Followup with Dr Lockefeer at 0820 …discussed the book and identified certain “life traps” to follow up on

Dec 19 - 23

No comments

Dec 24 - Wednesday

Christmas Eve dinner and gift exchange with Yvonne and Gretjan

Dec 25 - Thursday

Christmas breakfast and gift exchange with Trees…..

Trees is sick with a bad cold she had been fighting all week, cancelled our invitation to family dinner at Huub’s

Spoke to most of my family in Canada throughout the day, call from my son Chris on “boxing day”, our 2nd day of Christmas here in the Netherlands

Dec 26 - Friday

We enjoyed our turkey dinnner…not a tradition here in Holland

Dec 27 - 29

No comments

Dec 30 - Tuesday

Afternoon nap 1430 - 1715………YAWN!!

Dec 31 - Wednesday

GELUKKIG NIEUWJAAR!! Happy New Year!!
Oudejaarsavond ( Old Years Eve) - See How the Dutch Celebrate New Years Eve

Listening to the fireworks here at 1430…….

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Post Radiation Period: Oct 01 - Oct 31

31 Dec, 2008  No Comments

Starting the month with no comments for Oct 01-05, other than we took a weekend getaway to Germany from Friday Oct 03- Sunday Oct 05…We very much enjoyed the “quiet time” at The Golden Tulip, Castrop-Rauxel

Oct 07 - Tuesday

Up at 0530 , notice coughing has increased since I reduced my meds to 5 mg predisone per day, starting last Friday….

Oct 08 - Wednesday

OOPS!! I realized I had been taking the wrong meds ( not predisone)  since Friday…so in fact I had came off the steroids cold turkey since last Friday……back on correct meds

Oct 10 - Friday

Awake at 0300 with coughing spell - foamy clear/white mucus has started to dominate the coughing

Awoke again at 0745

Appointment at  0900 with Dr Loeffer…a part of the cancer support groups offered by our hospital facility, originally appointed to assist Trees and myself with the emotions involved with the cancer and treatment, meanwhile another resource had came available for Trees, so I attended this by myself….identified “lots of losses” that need to be examined.

I found the communication to be very useful ….There were 2 additional followups scheduled for a later time

Oct 12 - Sunday

Awoke at 0115 ….yet another coughing spell

Awake at 0730, took a drive to the coastal village of Yezeke from 1200 - 1600, stopping at Gilze Hotel near home for coffee, and dessert

Again a ribcage pain begins - took 2 x500mg parasidimol….that helps

Oct 13 - Monday

Some lingering rib cage pain throughout the day, took 2 x 500mg parrisidomol at 1330

Slept 1530 - 1730

Oct 15 - Wednesday

Followup appointment with Dr Retera, my lung specialist, at 1630

Revealed that pneumonits is improving somewhat, the upper lung is clearing, but an area in the lower center near the esophagus is still lingering.

Next Step: continue with reduced meds 1 x 5mg for 3 weeks, then 1 x 2.5mg predisone for 3 weeks util next appointment Dec 03

Oct 16 - 31

No further comments

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Post Radiation Period: Sept 26 - 30

31 Dec, 2008  No Comments

Sept 26 - Friday

Enjoyed time with sister-in-law, Anne Marie Birthday in the evening

Took 2×500mg  parasidimol before bed at 2300

Sept 27 - Saturday

Awoke at 0630

Slept 1530-1615…took 1 x 500mg parasidimol

At 2130 took 2 x 500mg parasidimol…then bed again at 2230

Sept 28 - Sunday

Up at 0730, again slept 1400-1630

Took 1 x500mg parasidimol before bed at 2230

Sept 29 - Monday

No comments

Sept 30 - Tuesday

Taking notice that trips up and downstairs leaves me with shortness of breath, and heart racing…seems has been like this for a few weeks now

Again took 1 x 500mg parasidimol at bedtime 2230

It appears that the radiation pneumonitis is the dominant concern during this post radiation period

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Post Radiation Period: Sept 20 - 25

26 Sep, 2008  No Comments

Saturday Sept 20

My oldest daughter Tammy, in Toronto is celebrating her birthday today, also picks up Tracy and Tim from airport after a safe trip from Amsterdam….Happy Birthday!! We speak to them all by telephone early afternoon, evening here with the 6 hour time difference.

Later in evening sister in law arrives with plants from her garden that she is renovating….enjoyed visit and tea and cake together

Sunday Sept 21

Awoke at 0900 —-J

Helped Trees plant all the new plants in front yard,,,, enjoyable, yet knocks me out physically

Otherwise a quiet restful day together

Monday Sept 22

Awoke at 0430 with what feels like start of head cold, sinus dried out, and raspy throat

Take a walk to canal for about 25 minutes ,,,,,,,,,,feels good

Tuesday Sept 23

Awake at 0730 ….head cold continues….

This is the first cold in almost a year….body was too busy fighting the cancer, and treatments……..so a cold is a blessing in disguise I feel….

Wednesday Sept 24

Awake at 0745 with nagging cough still hanging on

We do a major monthly food shopping trip today… Lidl, Jumbo, and local butcher

Seem to be fighting low energy levels again

Thursday Sept 25

Awoke at 0100 with major coughing, clear foamy mucus again, took 2 x 500 mg perasidimol, and was able to sleep until 0700

Went for 45 minute walk along the canal again….always refreshes me to visit the water… a favorite spot to reflect

Sheesh its almost a week since Tracy and Tim left….was great seeing them for the week……seems like just yesterday when I was just waiting for their arrival and now they been here and gone again….

Hey it is almost October, the leaves are turning color, and falling quite quickly now ,,,,,,,,,its been some year here anyway

 Fall of 2007

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Post Radiation Period: Sept 13 - 19

26 Sep, 2008  No Comments

Saturday Sept 13Tracy & Tim arrive at Schipol at 0545, and take train to Tilburg West arriving at 0850

After coffee, and a bite to eat we take them to the weekly market in Centrum, even though there was a light rain

Jet lag strikes…they sleep from 1300 - 1530, me too….

Sunday Sept 14

Yvonne and Gretjan visit 1130 - 1900, all 5 of us travel to Postel in Belgium for fries, and ice cream

I sleep from 1400 - 1530.…was up until 2300, actually feeling quite good again

Monday Sept 15

Up at 0730.…Tracy & Tim sleep until 1030ish,,,, jet lag diminishing

Again I slept a couple hours in the afternoon….

Tuesday Sept 16

Awoke at 0230 again with coughing, and clear foamy mucus…..

Went into the town center with Tracy and Tim to show them the sites, and enjoy lunch together

Again I slept 1600 - 1730.……seems to be a need this week again

Wednesday Sept 17

Did a 5 hour driving tour of a dike road in rural Netherlands near Leerdam, stopping for a nice lunch at a farm restaurant we had discovered on an earlier trip

Tracy and Tim made a special dinner for us tonight

Thursday Sept 18

Up at 0730, took a walk near the canal near our house, its been a while

Again slept in the afternoon 1530 - 1630.…

Enjoy visiting with Tracy and Tim

Friday Sept 19

Up at 0700 to drive Trees to work, so I can later drive Tracy and Tim to train station in Tilburg Centrum.

They are spending the day in Amsterdam, staying at the new CitizenM hotel at Schipol to catch their return flight to Canada at 0750 tomorrow

They catch train at 10:15 enroute to Schipol, I pickup Trees from work at 1230, and again slept from 1400 - 1645

It is always sad saying goodbye to family when they visit, but we must in order to greet them when they arrive next time….SMILE

It was a great week spending time with them again

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Post Radiation Period: Sept 08 - Sept 12

26 Sep, 2008  No Comments

Monday Sept 08

Still having the “pulling” pains in my back, right shoulder blade area, although less than yesterday

Tuesday Sept 09

Woke up coughing at 0700, clear foamy mucus, headache, sore chest muscles, and stomach pull from all the coughing.

Slept 1300 -1430, waking up to the coughing, and foamy clear mucus again

Wednesday Sept 10

Somewhat energetic again, waking at 0730, took a walk through the neighborhood to view the area where the car fire took place last night

Took apart clothes dryer to try to remedy a new noise….

Investigated lost CPP check , and recorded contact information

At 1900 noticed back/lung pain starting again, took 2 x 500 mg perasidimol again

Thursday Sept 11

Awoke at 0730.…7 year anniversary of 9/11 in NYC

Appointment with Dr Retera at 1350, reviewed CT scan, confirmed no evidence of tumor, but radiation damage is in progress ( pneumonitis ) , that could last up to a year

He prescribed an inhaler to help with cough , and breathing, and continue prednisone medication, with next appointment Oct 15.

It was somewhat a relief knowing more about the radiation pneumonitis, yet frustrating at the same time that the treatment was causing such damage

The positive is … NO tumor….SMILE

Friday Sept 12

An uneventful day….seems like the inhaler is helping relieve cough symptoms.

Looking forward to my daughter, and son-in-law arrival from Canada tomorrow

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